Testing, Testing, Testing!

It seems like all we've been doing lately is driving down to Cincinnati Children's Hospital for testing!  First they did developmental testing to see if any of his medical incidents had caused any brain damage. During an MRI we discovered that he had a brain cyst. I say "we" because the hospital already knew! They found it when he was 3 years old and had rode the rocking horse down the steps. No one EVER told us. The good news is that it has not grown since he was three! They will continue to keep an eye on it.

Now we are starting testing to see if he is on the Autism Spectrum. Seems to me like if he was, it should have been discovered sooner. Tomorrow we go in for speech evaluation, which is supposedly different from the developmental one they gave him over the summer. He will then go in for the actual autism testing in December for which we will receive the results in May 2014! To me, if their waiting list is that long that we have to wait 5 months for the results, then Cincinnati Children's needs to hire more doctors!

Today, I just heard from Jimmy's teacher that he isn't going from one class to another very well on his own. He is hiding between specials and going back to his IEP class. Just don't know what to do anymore. I think the fact that he won't swallow pills and we are limited to the Daytrana Patch isn't helping.  I may have to discuss other options with our doctor. 

On a more fun subject, Jimmy has started karate class at Pro Martial Arts. He looks really cute in his uniform. The class is 40 minutes long and he seems to start to lose interest after about 30 minutes.

We did have a little incident over the weekend when he did one of his stances, poop feel out of his pants! Lol! They talked to him about hygiene and all was forgotten.

The Holidays

Jimmy was very excited for the holidays. That was all he talked about for the whole month of December! He had a good Christmas and loved all of his gifts. A few days after christmas we got snow! I love snow. In past years Jimmy has been a little iffy with snow. One year I remember having to beg him to go out and play in the snow with me! This year HE begged to go out! As you can see from the pics he had a lot of fun!

He has been on a waiting list with Children's Hospital of Cincinnati to be evaluated for Autism. I called over the summer to see where we stood on the waiting list and they said he would be called in November. Well November has come and gone and so far we have been on the waiting list for 13 months! I think it's ridiculous.  I am currently filling out forms from Jimmy's school so he can be evaluated by the Kelly O'Leary Center. I beginning to think that he does not have Autism. I know there are many forms of it, but I just don't think he has it!.

He's doing much better in school, fewer bathroom accidents, which is always good! Lately the latest he has stayed up at night was 3am and that beats the 7:30 am during the summer (he would then wake up at 10am). Melatonin sometimes helps, but most of the time it doesn't!  He needs something to do! He would not be good at soccer, not a team player. So I'm sort of at a loss on that subject.

By the beginning of 3rd grade, I would like to get him sleeping in his own room at night, going to bed at a nice, decent hour, and no bathroom accidents. I would also like to see him have at least one friend, girl or boy. It breaks my heart that he doesn't have any friends at all. While in school he always has a teacher or an IEP aid with him. So that doesn't really help him find friends. I will be blogging more, at least once a week (fingers crossed) and hopefully I will find a direction for this blog to go.